The Missing Data: How Science Forgot Half the Population


Why it took me 55 years to get a diagnosis that should have come decades earlier

Hi Reader,

For most of my life, I thought something was wrong with me. I was smart, capable, and driven, but always fighting my own brain. I would start projects with fire and finish them in chaos. I’d forget appointments, lose track of time, and work twice as hard just to keep up. I was told I was disorganized, emotional, or just not trying hard enough.

It wasn’t until I was 55 years old that I learned the truth: I have ADHD. And only because my son was diagnosed with it and they said it was hereditary.

The diagnosis was both a relief and a revelation. For the first time, my entire life made sense. But what stunned me most was how invisible women like me still are in the world of science and medicine.

For decades, researchers studied ADHD almost exclusively in young boys. They built the criteria around how it showed up in them, hyperactive, impulsive, disruptive. Girls and women, who often mask symptoms through perfectionism, overachievement, or emotional regulation, didn’t fit the mold. So, we were overlooked, mislabeled, and left to internalize the struggle.

That missing data didn’t just distort the science. It distorted our lives.

Women were excluded from most major medical trials until the 1990s, deemed too hormonally unpredictable to study. The result was a health system built on male data, male baselines, and male assumptions. Even today, women’s pain is often dismissed or misdiagnosed. Heart attacks in women present differently, yet we are sent home. Women’s neurological and hormonal patterns are under-researched. And conditions that affect women disproportionately, like ADHD, autoimmune disorders, and chronic fatigue, still lag behind in funding and understanding.

I sometimes wonder how my life might have unfolded if someone had recognized the signs earlier. If a teacher had said, “You’re not lazy, you just think differently.” If a doctor had looked beyond anxiety or exhaustion. If medicine had been built with women’s brains and bodies in mind.

But what gives me hope is this: women are no longer waiting to be studied. We are studying ourselves. We are gathering our own data, tracking our own cycles, understanding our own patterns, and speaking up about what we know to be true.

The same is happening in business. Women are creating systems that work with their energy, not against it. They are redefining productivity, success, and self-worth in ways that reflect the complexity and brilliance of who we really are.

We were never too complicated. We were simply never counted.

It’s time we count ourselves by speaking up, sharing our truths, and owning our stories.


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